1. What is an invisible illness?
An invisible illness is any medical condition that isn’t outwardly visible to others, even healthcare professionals, making it challenging for both patients and doctors to identify the root cause of the problem. People with such conditions often look perfectly healthy on the outside, so it can be difficult for others to grasp their daily challenges and symptoms.
2. What are examples of invisible illnesses?
Since symptoms are not outwardly visible to others, some examples include conditions such as chronic pain disorders; mental health conditions, such as anxiety disorders; autoimmune diseases; diabetes; high blood pressure; and heart disease.
Some of the commonly known invisible illnesses related to peripheral neuropathy include: Charcot-Marie-Tooth disease, Chronic fatigue syndrome, lyme disease, Crohn’s disease, and celiac disease.
3. What are spoonies?
The Spoon Theory was created by Christine Miserandino to help her friend understand what it’s like to live with lupus, an invisible illness. It can be explained as: “Everyone is given a certain number of spoons at the beginning of the day. These spoons represent your energy for the day. Every activity you do during the day uses up a spoon.”
For someone with an invisible illness — in this theory known as a “spoonie” — even simple tasks can use up all their spoons for the day. This can leave them feeling exhausted and unable to do anything else.
4. How do you cope with an invisible illness?
Invisible illnesses can significantly impact a person’s quality of life. Many people struggle with fatigue, pain and brain fog daily. These symptoms can make working, socializing, or taking care of basic self-care tasks difficult.
Coping with an invisible illness can be difficult, but remember, you are not alone and help is available. Here are some ways you can cope with your condition:
- Educate yourself
- Implement lifestyle changes
- Look after your mental health
- Ask for help
5. How can I support someone with an invisible illness?
Here are a few ways to be mindful and support a loved one:
- Talk and actively listen
- Offer help with chores around the house
- Educate yourself
- Learn to empathize rather than sympathize
People with an invisible illness often look perfectly healthy on the outside, so it can be difficult for others to grasp the daily challenges and symptoms they go through. Learn more about invisible illness and related conditions.
WinSanTor is a clinical-stage biotechnology company focused on the discovery and development of treatments for peripheral neuropathies. We believe in creating a solution that works and brings relief to millions that are struggling with this disease. Learn more about our company, our drug and subscribe to our newsletter.
- “Peripheral Neuropathy and Invisible Illness”. WinSanTor
- “Invisible Disabilities: List and General Information”. Disabled World